Save the date for March 4-5, 2019 to join lupus advocates from across the country to share your story with Congress and urge them to support policies that increase funding for research and accelerate the development of new treatments. #LupusAdvocacy #RisingVoices
There has been a lot of interesting #lupus research news coming out of #ACR18 so far, including a discussion and research update on Plaquenil and it’s affect on eyes. Dr. Petri, our 2018 Evelyn V. Hess Award recipient, participated in this conversation where it was shared that issues from Plaquenil related to the eye are minimal. However, one should always work with their care team to monitor all treatments. Additional research news findings that may be of interest to you: patients with a high PREDICT score and a history of high blood pressure have much higher odds of having a future negative cardiovascular event. Stay tuned for more updates!
It was a packed room of physicians, researchers and other health care providers gathering today at #ACR18 to hear our Medical-Scientific Advisory Council Chair, Dr. Karen Costenbader and MSAC member Dr. Candace Feldman talk about how to manage hard to treat cases of #lupus.
@portraitsforprogress launched this year& we have 2 celebrity comedians, @jokoy & @huntersayswhat, auctioning their portraits to raise money for #lupuswarriors💜 Bid on a portrait or give any donation of your choice. Share/ Regram to spread the word! Together, we can make a difference!🤝 [link in bio]
We’re excited to be at @ACRheum Annual Meeting in Chicago this week! More than 50 Lupus Foundation of America funded researchers will be presenting on findings from their lupus studies during the event. Yesterday, our very own Trish Davidson, Senior Director of Education and Research, and Paola Daly, Director of Research, presented on our research showing that there are disparities among communities when it comes to lupus health care teams. Stay tuned for more updates and news from the conference! #ACR18
Are you looking for a way to get creative and fundraise for lupus research? Jocelyn is making her mark on lupus in Hawaii by holding a #Zumba fundraiser. Learn more in @midweekhawaii [link in bio] and start your own fundraiser by visiting lupus.org/makeyourmark
Life with lupus can be difficult at times, but it doesn’t always have to stop you from doing the things that matter to you. Tune into this month's Expert Series episode to learn 5 actionable steps to take after being diagnosed with lupus [link in bio]
This Halloween, think of making your tick-or-treating festivities into a fundraiser for lupus research, education and support. Find out how by checking out our Make Your Mark fundraising platform. [link in bio]
We're so excited to have emmy award-winning journalist, @plipof, from @nbcboston join us at the Parkman Bandstand next Saturday as our #WalktoEndLupusNow Boston event emcee! There's still time to register for Boston and our remaining fall walks -- join us and take steps towards a cure for lupus! #WalkWednesday [link in bio]
Studies find that the mental impacts of lupus in children and adolescents are greater than that of adults with lupus. Read more. #FactFriday #LupusFactFriday [link in bio]
We wanted to give a big shout out to @teddysphotos for taking the time to meet with #lupuswarrior Caitlin during his show in Pittsburgh last weekend! Ed, from the bottom of our hearts💜, thank you for taking the time to learn more about lupus and how it affects people like Caitlin!
Join us in Portland on Sept. 29 for our #WalkToEndLupusNow event with special guest @boxxy7, retired professional soccer player, Olympian and #lupuswarrior. Sign up for Portland's walk event or find one in your area! [link in bio]
Come on out to LA Live next month for our #WalktoEndLupusNow LA event. Joining us will be many familiar faces and avid lupus advocates like @youngandrestlesscbs's @katelinderyr, @sharontay888 of @cbsla, @theequalizermovie's co-star @kazytauginas, and more! Support a #lupuswarrior and register for the LA walk or find a #WTELN event near you! #WalkWednesday [link in bio]
We're proud to have created a space for those with lupus who need to connect with others who know exactly what they're going through. After 365 days of 24/7 support to the 5M+ around the world living with lupus, please join us in celebrating the launch of #LupusConnect!
Sometimes we flare but we'll always have flair💁💁♂️Show the highs and lows of being a #lupuswarrior and get in on the #flairnotflare challenge! ・・・ #Repost @thelupustrainer --- Every once in a blue moon my Lupus brain fog leads me to a good idea. Today I was talking to a fellow Lupus Warrior and went to type “flare” but accidentally spelled it “flair” which gave me an idea 💡 to start a new hashtag challenge! And that’s how the #flairnotflare challenge was born! 💁🏻♀️🚫😷 ➡️ Instructions: Post a side by side of two photos- one being your fancy & fabulous “flair” photo (you know the one where you’re channeling your inner Beyoncé 💁🏻♀️) and one “flare” photo where you are not looking or feeling your best. 😷 Thanks to my friends @emmalee.haga and @bfit_johnson for participating and I encourage anyone with a chronic illness (not just Lupus) to post and have some fun with it! 🚨Don’t forget to tag me, @thelupustrainer and hashtag #flairnotflare 💜💜💜 I figure this will help raise awareness and remind people that even though we’re chronically ill we’re still fabulous! 💁🏻♀️🤩🎉💪🦋💜💜💜 #lupusawareness #chronicillnessawareness
ATTN COLLEGE STUDENTS❗️ Make sure you take the proper steps to continue to manage your health while on campus. #NationalBacktoSchoolMonth #lupusandschool [link in bio]
“I wanted to do something to raise money for the Lupus Foundation of America, and I’ve always wanted to run a half marathon.” Joining Team Make Your Mark for his half marathon goals just made sense for Wills. He ran his first half marathon last year and decided to dedicate his training and fundraising to his girlfriend Aiden, a lupus warrior. In just a few weeks Wills will be taking on another half marathon with Team Make Your Mark in Philadelphia. Interested in Making Your miles Matter? Check out Team Make Your Mark Choose Your Own Race or join us in Philadelphia next month – we’re still looking for runners or walkers to join our 5K and 10K team! [link in bio]
Its #WalkWednesday and we still have a ton more walk events this year! Stand up and support those living with lupus and find a walk event near you #WTELN #WalktoEndLupusNow [link in bio]
It’s not too late to Make Your Mark in the fight to end lupus this summer. Consider holding a garage sale, bake sale, host a BBQ or even a block party. The options are endless with our Make Your Mark platform. For more information or to start planning your own fundraiser, visit the link in our bio! [link in bio]
We need YOU! Your participation in clinical trials can help increase medical knowledge and save or improve lives. Learn more about clinical trials in the August episode of The Expert Series. [link in bio]
Participating in research can bring us closer to finding new treatments and improve the lives of people affected by lupus. We’ve partnered with Antidote, a digital health company, to bring you the latest in clinical trial matching technology. The new tool can be found on our National Resource Center on Lupus and can help you find a trial that matches your needs and interests quickly and easily. Start searching today [link in bio]
Doctor appointments, treatments, sick days...there's a lot that students with lupus may need that leads to absences from school. Learn about adjustments and assistance that are available to students dealing with #lupusandschool. **Assistance may also be available for students attending public colleges and universities.** #NationalBacktoSchoolMonth [link in bio] [Este recurso también está disponible en español]