#Lupuswarriors are at higher risk for infections than the general population. • In the latest episode of The Expert Series, Dr. Eliza Chakravarty from Oklahoma Medical Research Foundation will teach you what you need to know about #lupus and vaccines. • • Watch at lupus.org/TheExpertSeries or LINK IN BIO.
Do you live or work in #Oregon? If your answer was 'yes' and you haven't registered for #WalktoEndLupusNow #Portland, then you're doing it all wrong! · Don't miss out on a fun day! Register for this walk or a walk in your area #WTELN · · Visit walktoendlupusnow.org or LINK IN BIO
Did you know that with Team Make Your Mark you can choose any race and make a difference in ending lupus? · Whether you are taking on a triathlon, running or walking - either for a loved one with lupus or yourself - our Team Make Your Mark leaders will arm you with everything you need to make your miles matter. · · Learn more: www.lupus.org/teammakeyourmark or LINK IN BIO
Not only will our LA walk get started a little later to protect you from the California sunshine, but @Power_106 will be there to help us pump it up!🙌 • Sound like fun? Sign up for the #WalktoEndLupusNow event in #LosAngeles on 9/28 or check out the walks near you! #WalkWednesday . • Visit walktoendlupusnow.org or LINK IN BIO
Huge THANK YOU to the @agentsofshield for hosting contest winner, Abas, and his friend Andrew, on their set during the filming of Season 7️⃣! And thanks to Abas, and everyone else who participated in the campaign, your donations make it possible for us to continue to support #lupuswarriors. We also couldn't have done this without the love from creator, producer and fellow lupus warrior @motancharoen and the cast+crew of Marvel’s Agents of S.H.I.E.L.D. We're grateful to have worked with you all throughout the seasons and appreciate the continued support!💜 Who's ready for the finale tonight?!👀
The impacts of lupus not only make it difficult to diagnose but also to treat. It can take months and even years to find the right treatment plan for someone with lupus. · · Learn more at lupus.org/UNVEILstudy #LupusFactFriday #FactFriday
With your help and the match from our Board, we were able to make 2019 Research Week a success! The gifts will directly support #lupus research. · Together, we will continue to support the scientists working so hard to find answers and develop better treatments!
We are dedicated to unlocking the mysteries of lupus to improve the lives of those impacted by it, which is why research is so important! · What was once thought to be impossible, research has helped many women with lupus, like Audrey, have successful pregnancies. · When you give today, your gift will be MATCHED! Double your impact to help ensure that lupus researchers have funding they need to continue groundbreaking research that will change the lives of those with lupus! · · Match your gift at lupus.org/2019ResearchWeek or LINK IN BIO
Sign up for our #WTELN Seattle event or find one near you! No walk in your area? No problem! Create your own walk with our Virtual Walk option! #WalkWednesday · · Visit walktoendlupusnow.org or LINK IN BIO
Still have a trip or two planned before the summer ends? • Make sure your medications arrive at your vacation destination safe and sound with these 🔟 travel tips [SWIPE]
One of the most promising research studies is our study evaluating mesenchymal stem cell (MSC) for #lupus treatment. With hopes of it being a safe & effective treatment for lupus, our Board matching donations up to $100,000! · Regram to show & encourage support for better treatments! · · Learn more about our stem cell research at: lupus.org/stem-cell or LINK IN BIO
Get ready for our 2019 Research Week! Starting tomorrow, you will get a peek at the labs and researchers helping us find better treatments & a cure. . Read more as our President & CEO discusses our current research efforts & the need to expand funding to further advance #lupus research. . . Visit lupus.org/research week or LINK IN BIO
In children and teens, lupus tends to be more aggressive and severe than it is in adults. Often, mental health concerns with children or teens with lupus are overlooked. Watch the latest episode of The Expert Series to learn why and how to get help for those at risk. · El lupus tiende a ser más agresivo y severo en niños y adolescentes que en adultos. A menudo, se pasan por alto los problemas de salud mental en niños o adolescentes con lupus. Vea el episodio más reciente de The Expert Series para saber por qué y cómo obtener ayuda para aquellos que están en riesgo. · . Watch at lupus.org/TheExpertSeries or LINK IN BIO
As a #lupus warrior, Sara wanted to make her own difference in the fight! Along with two community organizations, Sara organized a community 10K, family fun run and 2 mile walk. With Make Your Mark, Sara had all of the support and tools she needed to make her fundraiser a success. · Interested in starting your own fundraiser? From events with family and friends to community-wide endeavors, our Make Your Mark fundraising experts are here for you every step of the way! · · Visit lupus.org/makeyourmark or LINK IN BIO
Children with #lupus have more pervasive and life-threatening organ involvement compared to adults with lupus. Today, results from a first-of-its-kind, multidisciplinary research effort on childhood-onset lupus conducted by CARRA and our Foundation looked at research priorities for addressing the disease in children. The study found that the highest areas needing research in childhood lupus are nephritis, clinical trials, biomarkers, neuropsychiatric disease, and refractory skin disease. Find out more about the study and why multidisciplinary collaboration will be key: https://www.lupus.org/news/study-confirms-urgent-unmet-needs-in-childhoodonset-lupus . . [Link in bio]
It’s the finally summer time! Get outdoors and get creative while raising funds to end #lupus. Ana organized a softball event in her community to raise money to honor her daughter who has lupus. · Whether you put together a community sports game like Ana, create a lemonade stand, BBQ potluck or whatever else you have in mind – you can make it a fundraiser with all the tools you need with the #MakeYourMark program! · Learn more: lupus.org/makeyourmark OR LINK IN BIO
#LupusAwarenessMonth might be over, but we all know that raising awareness is a year round effort💪 • Thank you for helping us #RingItLouder for #lupus today!🔔💜
“Running the Rock N’ Roll Philadelphia Half with Team Make Your Mark was an absolute blast! It was great to be surrounded by so many strong #lupuswarriors as we fought for each step to the finish line.” – Sidney, lupus warrior and Team Make Your Mark half marathon finisher · Today is #GlobalRunningDay, a celebration that encourages people to run as much as they can. Are you looking for the perfect motivation to get up, get out and run? That motivation can be #lupus with Team Make Your Mark! · Whether you are a lupus warrior like Sidney or want to run to support someone you love, join us at the Rock ‘n’ Roll Philadelphia 5K, 7.6K or Half Marathon this September or at any race of your choosing as we cross the finish line to help end lupus! · Find out more: lupus.org/teammakeyourmark or LINK IN BIO
#LupusAwarenessMonth might be over, but raising awareness never ends... · A HUGE thank you to all #lupuswarriors, #PurplePartners, family, friends, doctors & more that decided to Go Purple to End Lupus in May. Together, we will bring an end to #lupus!💜
Good luck to our 10 #TeamMakeYourMark runners, joggers and walkers who will be making their miles matter in the fight to end #lupus at @runrocknroll San Diego this weekend! · Comment below with a 📣📣📣 and help us cheer on the team!
Women of childbearing ages, 15 to 44 years, are at greatest risk of developing #lupus. · Las mujeres en edad fértil, de 15 a 44 años, corren mayor riesgo de desarrollar #lupus. · #LupusFactFriday #ViernesDeVerdades #LupusAwarenessMonth #LAM19
Though #LAM19 is almost over, we can continue working to reduce the time to diagnosis by continuing to raise awareness and teach others about this disease. · Take the my Purple Pledge to commit to continue spreading awareness throughout the year. Visit lupus.org/purplepledge or LINK IN BIO · #LupusAwarenessMonth #LAM19
On average it takes of 6 years for a person to be diagnosed with lupus from when they first notice symptoms. · Toma un promedio de casi 6 años, desde el momento en que las personas con lupus notan por primera vez sus síntomas hasta ser diagnosticados. · #LupusFactFriday #FactFriday #ViernesDeVerdades #LupusAwarenessMonth #LAM19
This Walk Wednesday, we want to give a shout out to our Chicago event, taking place on June 9 at the beautiful Montrose Harbor. · Michele Worth is participating in the #walktoendlupusnow for the first time this year. Here's what she had to say as the even approaches: “I am walking to raise awareness and one day put an end to lupus. I am excited to take part in the Chicago Walk to End Lupus Now event on behalf of my daughter Rachel, who was recently diagnosed with lupus. We walk in support of all those who suffer from this cruel and mysterious disease, knowing that the money we raise will help find a cure!“ · If you're not in Chicago, we have tons of walks in cities across the country - find yours! walktoendlupusnow.org or LINK IN BIO
We’re very excited to share that the House Defense Subcommittee has DOUBLED funding for the Lupus Research Program to $10 Million for 2020! Thank you lupus advocates for urging your Representatives to increase funding for this important #lupus research program! . . Visit the link in our profile to read more.
It's never too late to join the fight against lupus! Posting, sharing, encouraging donations (check out IG's new donate button!😉), there are tons of ways you can still Go Purple to End Lupus this May! Check 'em out!💜 · Visit lupus.org/lam · · #LupusAwarenessMonth #LAM19
S/o to each and every one of you that #PutOnPurple today for #lupus awareness. This year, we had more people participate than we've seen before and are happy that more people are learning about lupus and supporting our cause! • #LupusAwarenessMonth #LAM19 #POP19
The #PutOnPurple party is just getting started! We wear purple today to raise awareness of this disease and show our strength as #lupuswarriors 💜💪🏼 #lupusawarenessmonth
Here at the National office, we're ready for tomorrow's #PutOnPurple Day! Are you? · Make sure you pull out your purple gear and send all of your reminder texts so family and friends can also Go Purple to End Lupus! · · · ¡Aquí en la oficina nacional, estamos listos para mañana el Día Ponte Púrpura! ¿Y usted? · ¡Prepárese hoy y elija ya su ropa color purpura y accesorios y mande mensajes recordatorios para así que su familia y amigos también puedan Ponerse Purpura por lupus mañana! · · #LupusAwarenessMonth #LAM19 #POP19
Check out our latest episode of The Expert Series for tips to help improve communication between you and your health care provider to get the most out of your doctor appointments. • Visit lupus.org/TheExpertSeries OR [LINK IN BIO]
Today is the 16th annual #WorldLupusDay. We don't just fight for the many Americans living with lupus but also for the over 5 million lupus warriors worldwide. As we work to expand and improve research and support services for ALL people living with lupus, we want our fellow warriors around the world to know we stand with them in the fight against lupus! · · Hoy es el 16 Día Mundial de Lupus. No luchamos solamente por los americanos viviendo con lupus, pero también luchamos por los más de 5 millones de luchadores con lupus al nivel mundial. A medida que trabajamos para ampliar y mejorar las investigaciones y los servicios de apoyo para TODOS aquellos viviendo con lupus, queremos que nuestros compañeros en esta lucha alrededor del mundo sepan que estamos con ellos en la lucha! · · #DíaMundialDeLupus #LupusAwarenessMonth #LAM
Lupus is 2-3 times more common among women of minority racial and ethnic groups. · El lupus es de 2 a 3 veces más común entre las mujeres de grupos minoritarios étnicos y raciales. · #LupusFactFriday #factfriday #viernesdeverdades #LupusAwarenessMonth #LAM19
Young African American and Latino women are most at-risk for developing #lupus. Check out befiercetakecontrol.org to raise awareness of the signs and symptoms of lupus, and helping to reduce the time to diagnosis. · Las jóvenes Afroamericanas y Latinas corren mayor riesgo de desarrollar #lupus. Visite tomacontrol.org para crear mayor consciencia de las señales y síntomas de lupus, y así ayudar a reducir el tiempo a diagnosis. · #LupusAwarenessMonth #LAM19
9 in 10 people who have lupus are women. · 9 de cada 10 personas que tienen lupus son mujeres. · #LupusFactFriday #viernesdeverdades #LupusAwarenessMonth #LAM19
Know the signs and symptoms of #lupus and use this video to learn more and spread awareness during lupus. · Conoce los signos y síntomas de #lupus y utiliza este video para aprender más y crear conciencia durante el mes de la concientización sobre el lupus. · #LupusAwarenessMonth #LAM19
Save the date for March 4-5, 2019 to join lupus advocates from across the country to share your story with Congress and urge them to support policies that increase funding for research and accelerate the development of new treatments. #LupusAdvocacy #RisingVoices
There has been a lot of interesting #lupus research news coming out of #ACR18 so far, including a discussion and research update on Plaquenil and it’s affect on eyes. Dr. Petri, our 2018 Evelyn V. Hess Award recipient, participated in this conversation where it was shared that issues from Plaquenil related to the eye are minimal. However, one should always work with their care team to monitor all treatments. Additional research news findings that may be of interest to you: patients with a high PREDICT score and a history of high blood pressure have much higher odds of having a future negative cardiovascular event. Stay tuned for more updates!
It was a packed room of physicians, researchers and other health care providers gathering today at #ACR18 to hear our Medical-Scientific Advisory Council Chair, Dr. Karen Costenbader and MSAC member Dr. Candace Feldman talk about how to manage hard to treat cases of #lupus.
@portraitsforprogress launched this year& we have 2 celebrity comedians, @jokoy & @huntersayswhat, auctioning their portraits to raise money for #lupuswarriors💜 Bid on a portrait or give any donation of your choice. Share/ Regram to spread the word! Together, we can make a difference!🤝 [link in bio]
We’re excited to be at @ACRheum Annual Meeting in Chicago this week! More than 50 Lupus Foundation of America funded researchers will be presenting on findings from their lupus studies during the event. Yesterday, our very own Trish Davidson, Senior Director of Education and Research, and Paola Daly, Director of Research, presented on our research showing that there are disparities among communities when it comes to lupus health care teams. Stay tuned for more updates and news from the conference! #ACR18
Are you looking for a way to get creative and fundraise for lupus research? Jocelyn is making her mark on lupus in Hawaii by holding a #Zumba fundraiser. Learn more in @midweekhawaii [link in bio] and start your own fundraiser by visiting lupus.org/makeyourmark
Life with lupus can be difficult at times, but it doesn’t always have to stop you from doing the things that matter to you. Tune into this month's Expert Series episode to learn 5 actionable steps to take after being diagnosed with lupus [link in bio]
This Halloween, think of making your tick-or-treating festivities into a fundraiser for lupus research, education and support. Find out how by checking out our Make Your Mark fundraising platform. [link in bio]
We're so excited to have emmy award-winning journalist, @plipof, from @nbcboston join us at the Parkman Bandstand next Saturday as our #WalktoEndLupusNow Boston event emcee! There's still time to register for Boston and our remaining fall walks -- join us and take steps towards a cure for lupus! #WalkWednesday [link in bio]
Studies find that the mental impacts of lupus in children and adolescents are greater than that of adults with lupus. Read more. #FactFriday #LupusFactFriday [link in bio]
We wanted to give a big shout out to @teddysphotos for taking the time to meet with #lupuswarrior Caitlin during his show in Pittsburgh last weekend! Ed, from the bottom of our hearts💜, thank you for taking the time to learn more about lupus and how it affects people like Caitlin!
Join us in Portland on Sept. 29 for our #WalkToEndLupusNow event with special guest @boxxy7, retired professional soccer player, Olympian and #lupuswarrior. Sign up for Portland's walk event or find one in your area! [link in bio]
Come on out to LA Live next month for our #WalktoEndLupusNow LA event. Joining us will be many familiar faces and avid lupus advocates like @youngandrestlesscbs's @katelinderyr, @sharontay888 of @cbsla, @theequalizermovie's co-star @kazytauginas, and more! Support a #lupuswarrior and register for the LA walk or find a #WTELN event near you! #WalkWednesday [link in bio]
We're proud to have created a space for those with lupus who need to connect with others who know exactly what they're going through. After 365 days of 24/7 support to the 5M+ around the world living with lupus, please join us in celebrating the launch of #LupusConnect!